Success Story

Successful Match Story

 

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I met Kathy Rodgers at the Autism Awareness Fair in September of 2016. She came up to the Parent to Parent table and asked me if we made matches for grandparents. I told her that of course we would do that.

 

After the event, I called Kathy to get more information so that I could make a match for her. We talked for a while. Kathy went on to tell me that her granddaughter had microcephaly and a rare condition called Diamond Blackfan Anemia.

 

I was able to match Kathy quickly with a mom whose child had microcephaly. During follow up, Kathy said that she talked to that mom for 1 ½ hours. It took more research to find a parent whose child has Diamond Blackfan Anemia. I was able to match Kathy with a parent through Parents of Amazing Kids which is the Parent to Parent program in Arizona and with a parent who lives in England.

 

Kathy said, “It was nice to hear all the information that my peer supporter shared with me. We had the same experiences.  I was able to confirm things and express concerns over a difficult diagnosis. When the mom described her son, I felt like she was describing my granddaughter. It is nice to be connected to someone going through the same thing instead of just reading about it. “

 

I feel privileged to be able to be a part of a program that is dedicated to helping families receive support during difficult times.

 

 

 

Submitted by, Pam Matesevac

South Central Regional Coordinator