This program gives parents and caregivers of individuals with Trisomy 21 (Down Syndrome) the social, emotional, and informational support they need by matching them with a “Parent Peer,” or mentor. Parent Peers are family members who have experience and knowledge about raising a child or adult with Down Syndrome and are willing to share what they have learned with families facing similar circumstances for the first time. View full program brochure.
Children’s Hospital of Philadelphia (CHOP) program provides multidisciplinary long term care to children with conditions that limit lung growth resulting in pulmonary hypoplasia.
Parent to Parent of PA and the CHOP PHP clinic collaborated in the winter of 2020 to create a formal program to match families whose children were diagnosed with Pulmonary Hypoplasia to Parent Support parents for emotional support and information.
Parents who were willing to share their family’s experiences with other families just starting their journey were recruited and trained and the first official match for this program was made in May 2021. If you are interested in being “matched,” please click on the “Get Matched” form on the Home Page under Matches.